Privacy Policy

2018-08-30

Biobank Learning is an online platform for the dissemination of learning and training material for biobank-based research professionals. It includes resources developed in the frame of the B3Africa project, the BCNet initiative, as well as other resources from relevant projects and initiatives. It also provides link to resources developed by other actors.

Biobank Learning has been developed by, is hosted and managed by the International Agency for Research on Cancer (IARC), as part of the Agency’s Education and Training programme. As such, complies with the IARC Privacy Policy.

In addition, Biobank Learning’s privacy policy includes articles that are more specific to online learning platforms. It describes the way in which Biobank Learning processes the personal data of visitors and users (hereinafter referred to as “the Users”) when navigating our www.biobanklearning.iarc.fr site (hereinafter referred to as “the Site”).

What information does Biobank Learning collect and why?

Normal web site usage

In general, you can browse the Biobank Learning site without telling us who you are or revealing any personal information about yourself. The only information we gather during general browsing is from standard server logs. These include your IP (Internet Protocol) address, domain name, browser type, operating system, and information such as the web site that referred you to us, the files you download, the pages you visit, and the dates/times of those visits.

The information gathered during general browsing of the Biobank Learning website is used to analyse trends and usage of the Biobank Learning site and to improve the usefulness of the site.

Registration and consultation of e-learning resources

To consult resources on the platform, Users need to create an account (register). During the registration process, we collect the following personal information: first name, last name, email address, gender (with an option “prefer not to mention”), age range (with an option “prefer not to mention”), country, institution, type of institution, expertise and function. These information are useful to us for many reason:

  1. The main objective of Biobank Learning is to bring learning and training resources closer to their target audiences, more specifically in low-and middle-income countries. Compiling information about your institution and country will help us to assess whether we are achieving this objective, and if not, towards which regions our efforts should be targeted (through, for example, more resources translated in different languages or different time schedules for synchronous webinars).
  2. Another transversal objective of e-learning is to reduce barriers and discrimination to continuous professional development. This implies ensuring access to learning opportunities, regardless of gender and age (from entry-level to senior professionals). Providing information about your gender and age range is not mandatory, but it would help us to monitor whether we are reaching all categories equitably.

We also collect data about which courses are followed/completed by Users, and the rating and comments the Users provide after consulting a resource. For longer curricula or blended courses (combining online sessions with in-person workshop), users may be asked to complete a satisfaction survey. This enabled us to assess the relevance of the resources posted on the platform, from the end-user point of view. It will guide our choices and priorities in the future, with regards to further development of e-learning resources for professionals working up-and down-stream of biobanking.

Information collected through registration and use of Biobank Learning will also be aggregated (anonymized) to produce reports and project proposals to search for funding for the further development of the platform.

Profile and Members’ Pages

Once Users are registered, they may edit their information at any time on their “profile” page. They may also add other optional information, such as their spoken languages, their biography, links to their Facebook, Twitter and LinkedIn accounts as well as Skype or Slack IDs. They may also add a profile picture. The reason why we provide those options is that we consider networking and peer-to-peer interactions as an integral part of the learning process.

Users may choose to make their profile visible to everyone or only to them (http://biobanklearning.iarc.fr/account/privacy/).

Notifications and Newsletters

Biobank Learning will send notifications and newsletters to his members concerning upcoming events, publications, opportunities and other information related to biobank-based research. At any time, Users will have the possibility to unsubscribe to these newsletters and notifications, by clicking on the corresponding link in the email campaign.

For how long are the personal data of users of Biobank Learning kept?

Your personal information is kept as long as you actively use Biobank Learning, and for a period of five years after your last use of the platform. To allow members to recover their accounts if they forget their password after a prolonged period without connecting to the Site, your email is kept for reasons of security. However, it is possible to delete it by amending the information in their profile in the section “My Account” on the Site.

Security

All information collected by Biobank Learning is stored in the platform’s server at IARC.

We do not sell or share any personally identifiable information volunteered on the Biobank Learning site to any third party. Any information provided to Biobank Learning by Users is held with the utmost care and security, and will not be used in ways other than as set forth in this privacy policy or in ways to which you have explicitly consented. IARC employs a range of technologies and security measures to protect the information maintained on our systems from loss, misuse, unauthorized access or disclosure, alteration, or destruction.

All Biobank Learning partners who have access to, and are associated with the processing of personal data, are obliged to respect the confidentiality of official business matters, including personal data.

The Biobank Learning site contains links to sites external to the iarc.org domain. IARC is not responsible for the privacy practices or the content of such sites.
The security of personal data also depends on the Users. Users who are members of Biobank Learning agree to keep their user ID and password confidential. Members also agree not to share their account and to inform Biobank Learning of any unauthorised use of the account as soon as they become aware.

Opting out and changing your information

The Users may decide at any time to delete their account by selecting the option on their account page (http://biobanklearning.iarc.fr/account/delete/). Your personal information will be deleted in this process.

Notification of changes

Biobank Learning pays continuous attention to the data of our Users. We may be required to amend, add to or update the Privacy Policy. We ask you regularly to consult the most recent version in force, accessible on our Site. If major amendments are made, we will inform you by email or through our services to allow you to examine the amendments before they become effective. If you continue to use our services after the publication or sending of a notice concerning the amendments made to the Privacy Policy, this means that you accept the updates.

Contact

For questions or queries regarding this privacy policy, please contact us:
http://biobanklearning.iarc.fr/contact-us/.

*Cookies
A cookie is a small amount of data that is sent from a web server to your browser. It is normally used to assign a unique identification to your computer and securely store information such as user IDs, passwords, preferences, and online profiles.

It is stored on the hard drive of your computer. You can choose not to have cookies delivered by WHO sites by changing your browser settings. Different web sites can send their own cookies to your computer. To protect your privacy, your browser only allows a web site to access the cookies it has already sent you, not the cookies sent by other sites.

You can choose not to have cookies delivered by WHO sites by changing your browser settings. Different web sites can send their own cookies to your computer. To protect your privacy, your browser only allows a web site to access the cookies it has already sent you, not the cookies sent by other sites.